Please get in touch with Sarah ahead of a meeting and let her know if you intend to go along so that she can let the venue know about numbers.
Sarah's link with alopecia:
Sarah has had frontal fibrosing alopecia with lichen planopilaris for over two years. Katie's link with alopecia:
Katie was first diagnosed with alopecia areata in January 2016. Since August 2017 Katie's hair on her head has actually fully grown back but she still has patches over the rest of her body.From Sarah:
"I found it difficult to accept my diagnosis of alopecia but really
benefitted from talking to other people with the same condition and
sharing experiences. I'm hoping that I can continue to facilitate this
for the Newcastle support group. I want to provide a space where people
feel they can express themselves and feel supported to do so."From Katie:
"I want to run a group to help people feel better about having alopecia. I hope to create a fun, positive and comfortable environment for people with alopecia (or those who have partners/children in their lives that are affected) where people can share advice, tips and tricks on coping with this condition."Need Advice or Support Outside of the Group Meetings?
main role of support group leads is to facilitate, and answer questions
about, the group meetings. Some may offer additional support and you
can see what is on offer from Sarah and Katie below:
- Both Sarah and Katie have their telephone numbers advertised and are happy to provide a listening ear via
telephone call if someone phones (6:30pm onward in the evenings and 10am-5pm weekends).
- Both Sarah & Katie are happy to receive support questions from those in their local area and
will answer to the best of her ability based on her own knowledge and
experiences. Please be aware that any questions Sarah and Katie are unable to
answer will be sent on to staff at Alopecia UK.
note that all of our support group leads are volunteers and do this in
their spare time. As such please allow up to a week for replies to
emails. The majority of group leads are not trained health
professionals and will be helping from the standpoint of being someone
who is affected by alopecia themselves and wanting to reach out and help
You can always contact Alopecia UK head office
direct during office hours should you have any queries that need a more urgent response.Suggestions, Comments, Compliments, Complaints?
you have any 'Suggestions, Comments, Compliments or Complaints' about
any of the Support Groups listed on the Alopecia UK website then you can
let us know by clicking here
Feedback is always appreciated. The information will be used by
Alopecia UK to help us understand what works and what doesn't in
order that we can support and advise group leads more effectively and
develop the Alopecia UK support group network.