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This discussion forum has been designed to allow you to connect with others, relieve feelings of isolation, share experiences, chat about day-to-day challenges and learn more about alopecia on a peer-to-peer support level.

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Francesca View Drop Down
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Joined: 05/September/2017
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Post Options Post Options   Thanks (1) Thanks(1)   Quote Francesca Quote  Post ReplyReply Direct Link To This Post Posted: 16/January/2018 at 5:49pm
Hi Mariyah,

Thank you for your reply.
As you have had some success with using Dermovate over a good deal  of time, I will persevere with it and will seek to get a repeat prescription when needed. I only use it once a day and apart from causing some sensitivity there are no other side effects.
My Alopecia is on my crown near the back, but spreading width ways and that is where I had my biopsy done. It was not painful and I am glad that it was done, so that I knew what sort of Alopecia I had.
Anyway, I will keep positive and am so glad that you and other people on here are around to give advice and comfort.
Take care
Francesca. 
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Francesca View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Francesca Quote  Post ReplyReply Direct Link To This Post Posted: 16/January/2018 at 5:59pm
Hi 2Westies

Thank you for your reply.
I too have gone through the menopause, relatively easily, but had no idea this was looming on the horizon! Some days I think about it more than other days, but try and get on with doing what I have plans for. My alopecia is on my crown and spreading widthways, which is where the biopsy was done. At first I could cover the baldness with combing my hair back over it, but now there is a noticeable bald spot, but it could be a lot worse, so I count myself luckier than some.
Anyway, I shall continue with the Dermovate and don't seem to have any side effects from it.
Your reply has been very helpful.

Take care
Francesca
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Mariyah View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Mariyah Quote  Post ReplyReply Direct Link To This Post Posted: 16/January/2018 at 9:57pm
Anytime!

Best of luck x
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Post Options Post Options   Thanks (0) Thanks(0)   Quote AHeb Quote  Post ReplyReply Direct Link To This Post Posted: 14/February/2018 at 2:45pm
I'm new here too and very interested that at least 2 people with suspected androgenetic alopecia have recently been referred to a dermatologist.

My doctor has refused to refer me to a dermatologist and will not help towards getting a wig, although I did explain that my husband and I are on a low income at present and if I have alopecia we should qualify for something. They have not physically seen me, I've had blood tests but all the consultations have been by telephone. 

One female GP actually said that she has two sisters with the same problem and it doesn't bother them! Whilst also saying that she personally isn't affected. She seemed to imply that at my age I shouldn't care about my appearance. This upset me, especially as I'm still of working age. 

I don't know whether this lack of support is something to do with services in this county, this area, or just with this GP practice. How can I find out?
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Francesca View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote Francesca Quote  Post ReplyReply Direct Link To This Post Posted: 14/February/2018 at 3:53pm
Hello AHeb,
I am sorry to hear of your upsetting experience.  Did your Doctor say why he/she would not refer you to a Dermatologist?  Perhaps if you make another appointment with your Doctor and explain how upsetting this is to you and how it is affecting your personal as well as work life, then maybe they will rethink about a referral for you.
I don't know if this lack of service is just down to where you live or not. Maybe there is someone else on here who lives nearer to your area and may be able to suggest any further help. 
The female GP doesn't sound helpful at all and the only other suggestion is to see if any friends/family can recommend a more sympathetic GP.
I do hope you can find some more help soon.
Take care
Francesca.


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Pavla View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote Pavla Quote  Post ReplyReply Direct Link To This Post Posted: 17/February/2018 at 8:42pm
Aheb...so sorry that you have an extremely bad GP.  She has obviously forgotten what her title (GP, General Practitioner) actually entails to focus on the health of the whole person, combining physical, psychological and social aspects of care.  If I were you, I'd be reminding her of her duties.  You are entitled to demand a referral to the hospital dermatology department and you also need to have tests done to rule out things that could be causing the hair loss that may not be down to alopecia.  I can't believe that you have never actually seen a GP face to face...please get an appointment booked ASAP and, if they take blood tests that show no other possible reason for the hair loss, request a referral to the local hospital dermatology department.  I couldn't give a rat's ass what this GP's sister's feeling are towards their alopecia...if they are not bothered then that's up to them.  She has a duty of care to YOU...you are her patient and she must do her utmost to help you.  With regards to help towards the cost of a wig.  If you have an HC2 or HC3 certificate you just need to produce this to the supplier of the wig.  If you haven't already got either of these, you can obtain a form from your GP (some dentists, opticians also have these available or you can obtain one from your local hospital).

I would seriously recommend that you make an appointment to see your GP and then ask for a blood test to rule out other possibilities for your hair loss and, if they do not show anything, or if any other treatment she prescribes has no effect, then she must surely refer you to the hospital for a definitive diagnosis.    Good luck!
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